Thursday 16 July 2009

Lost for Words

The last few days i have been wondering what to say for the best. Alan has been very very down asking me all the time why he is not normal and that he doesn't want to do his nebulisers and take his medicine. It is really upsetting me. We have been chatting about it and i try to explain how important it is to take his meds to keep him well, and healthy but he says he wants to be a normal boy, i say you are a normal boy and a very special boy to us all,but nothing i say seems to be helping. Does anyone out there have any tips on what to say to him? i will try anything

3 comments:

  1. Thats really tricky. You could try to explain that everybody is made slightly differently which is why people are so great. Some people have to go to the opticians and wear glasses, somepeople use a wheelchair to get around, some people have an asthma inhaler for sports, somepeople aren't able to eat certain kinds of food or nuts, etc etc so everybody has different things they need to do to keep their body healthy and Alan having his nebulisers etc is what he needs to do to look after himself.
    Perhaps you could point out other people you know who have to do certain things to do to'keep themselves healthy'.
    Hope that can give you some ideas.
    xxx

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  2. I agree with Jessica. You could point out that some famous people and talented sports stars have medical conditions that require them to take daily medication to keep them well. There are quite a lot of books around that you could read together to explore the subject (do a search on Amazon).
    Do you think something has been said a school that has made him question things? It may be worth having a chat with his teacher.
    I have found that children's meditation CDs from "Calm Kids" really help children relax and forget their worries for a short while. The Bedtime one is particulary good for sending kids off to sleep.
    I hope this helps. I have send Alan a package yesterday, I hope this cheers him up a little.
    Kim x

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  3. Hi Jessica and Kim, thank u so much for the advice, i have found a book about cf why you need to do meds and physio we are busy going over it, i really have never encountered this with Alan before as he is normally a upbeat boy, i really do think someone has said something to him because in the car he said to me Callum said u gave me cf, i was devestated because i beat myself up enough about it, gosh its horrible. I will explore exactly what has been said but will need to do it slowly and in Alans time because he is not saying much at all except he wants to be normal :(

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