Tuesday, 26 June 2012

Cf clinic

Alan had clinic today. He is very productive of sputum at the moment so his physio session this morning before we went got a very good sample to sent to the lab, hopefully the results will be back on Thursday.
The dr was pleased with his height and weight, he has grown 2cm since last visit. His chest is a bit wheezy so we have to up his physio sessions. He also discovered a polyp up his nose and said his airways were very red and inflamed, so they prescribed a new medicine called naxonex which is a steroid spray that goes up his nose he's to have it for a few weeks to see if it makes a difference, if not then the ent will see him to arrange a operation to remove the polyp. He's had them before, one of the rubbishy things that go with cf. The dr also looked at his tummy which looks really bad with bruises and needle marks, she said he is doing really well and although his tummy looks bad there are no lumps or bumps with the needles going in which is good, she encouraged him to try other parts of his tummy to stop the same part being used all the time. The dietician was delighted with him and his appetite so no changes made. The physio was a little concerned with the colour and amount of his sputum but until the results are back we wont know.
We have to go back on Friday as alan needs to go into the lung Lab every month now as his Lung function has been down by over 10% and we don't know why.
When we picked him up today from school, he had a picture of him holding the olympic torch here it is, he looks so proud to be holding it.

Monday, 25 June 2012

MRI scan

Alan had a MRI scan on Saturday of which we get the results of on the 30th july. He was very brave and lay very still, it took about a hour to scan his head and neck. After the clinic we went to the kelvingrove museum to have a look around and to have a bite of lunch. We saw a dinosaur footprint.
He also has started insulin at lunch time too, it's 5 injections a day and 10 finger pricks. He's my very brave special boy .
He has the cf clinic tomorrow so
Will update tomorrow x

Sunday, 10 June 2012


Wanted to update you on Alan.
He's having a really difficult time at the moment. He had a sensor in his tummy monitoring his glucose levels for a week as they discovered his sugars were spiking. So the hospital has now put him on insulin with every meal, and a long acting insulin so he injects 5 times a day and pricks his fingers 10 times a day, before and after meals. His fingers and tummy are in a awful mess with pin pricks.
They also discovered his lung function Is Down so they started him on a new inhaler and has to go to the lung lab every month. His portacath, here he gets his iv antibiotics through has stopped working so he requires an operation for it to be removed which is done at the specialist hospital in Glasgow.