Tuesday, 26 June 2012

Cf clinic

Alan had clinic today. He is very productive of sputum at the moment so his physio session this morning before we went got a very good sample to sent to the lab, hopefully the results will be back on Thursday.
The dr was pleased with his height and weight, he has grown 2cm since last visit. His chest is a bit wheezy so we have to up his physio sessions. He also discovered a polyp up his nose and said his airways were very red and inflamed, so they prescribed a new medicine called naxonex which is a steroid spray that goes up his nose he's to have it for a few weeks to see if it makes a difference, if not then the ent will see him to arrange a operation to remove the polyp. He's had them before, one of the rubbishy things that go with cf. The dr also looked at his tummy which looks really bad with bruises and needle marks, she said he is doing really well and although his tummy looks bad there are no lumps or bumps with the needles going in which is good, she encouraged him to try other parts of his tummy to stop the same part being used all the time. The dietician was delighted with him and his appetite so no changes made. The physio was a little concerned with the colour and amount of his sputum but until the results are back we wont know.
We have to go back on Friday as alan needs to go into the lung Lab every month now as his Lung function has been down by over 10% and we don't know why.
When we picked him up today from school, he had a picture of him holding the olympic torch here it is, he looks so proud to be holding it.

1 comment:

  1. Hi Alan
    Hi My Name is Jenna
    You are a brave courageous fighter, and an inspiration.
    I was born with a rare life threatening disease, 14 other medical conditions, and developmental delays.
    Tis a lesson you should heed,
    Try, try again;
    If at first you don't succeed,
    Try, try again;
    Then your courage should appear,
    For, if you will persevere,
    You will conquer, never fear;
    Try, try again
    who invented fire? some bright spark