Update

Alan had a clinic appointment today, and although he has still got this infection hanging over him, he has grown and put on weight he is on the 75th centile for his height he is now 124cm and he is on the 91st for his weight he is 28.2kg i am so pleased with him, he has worked hard at eating because lately he has had no appetite. His chest is a bit clearer than last week so hopefully the antibiotic is starting to work, he has to be re swabbed next week, although the physio did take one today.
He also got his flu jag and his swine flu jag yesterday, he was very brave but said the swine flu one was particularly sore, his arm is tender today.The nurse said he was very brave, he has to get another injection in 3 weeks.
I picked up our pantomime tickets today we are going to see Sleeping Beauty we are looking forward to it very much.

This is Alan and i having a wee cuddle when he was
not feeling so well.

Long time in posting... Sorry

It has been ages since i updated, Ijust dont know where the time goes.
I had Alan at the Dr again today, he has been suffering really badly from an infection that we just cant seem to move.The Dr has given him augmentin and a throat spray, to try and move it, to be honest I'm not hopeful. I think it is much deeper down and needs something stronger.
Alan in himself is plodding on, but this is getting him down, his cough is really wet and deep and sounds really bad, so his throat is also sore.
He was looking forward to Halloween, his daddy carved him a pumpkin which he loved.
He had a monkey costume but he really was not well enough to enjoy it.
On a brighter note, he has been doing really well with his school work, he got 9 out of 10 for his spelling, and managed to pass his level A maths, i am really proud of him.
Alan and I celebrated our 20th wedding anniversary too, we went away up to the highlands of Scotland the scenery was stunning, i have uploaded a few pics.
I promise it wont be so long to my next posting

Alan's Birthday

Gosh, i can hardly believe Alan is 7 today, this time 7years ago i was being prepared for surgery for a c-section, he was born at 10.15 in the morning. 7 years its so hard to believe! We have had some rough times with his health and we have had some bad times dealing with his illness but i wouldn't change him for a minute.He is a special, loving and kind boy and we are lucky to have him in our lives.We are having some people over later so i will update with some pictures later on.

Infection :(

We got a call from the hospital yesterday afternoon, to say Alan is growing haemophilis influenza bug again, they have started him on 2 weeks worth of augmentin antibiotic. He has had a runny nose and a cough for weeks and i had handed in sputum after sputum but nothing showed up in the last 2 then yesterday the nurse says its a heavy growth! I was really hoping to get through his birthday without this but we will manage, he has to be re swabbed the day after his birthday.

I was so down last night with this news. The doctor was say how good a job i was doing keeping him well, then this! But today I'm feeling stronger and know i do do a good job with him, this is something out with my control.

Life back at school

Alan has really settled back into life at school, he was having real trouble with going to the toilet and Vikki from postpals had suggested to me to ask the school about him using the teachers toilets so i did, the headmaster said to me he hadn't thought of it before but there was a disabled toilet that he could use, oh my what a different boy coming out of school, he has not been desperate for the toilet all week and what a difference this has made, So Vikki if u are reading this a huge almighty thank u for your suggestion.
Alan has also been doing a topic at school on Castles, oh it really has captured his imagination, we already take him and Amy to the castles in Scotland to explore and he is really interested in them, but at school they are learning about knights and battles around castles and life in the days of old. Every night he has his drawing pad out drawing castles and knights and writing stories about them, he also had a shoe box and made a castle out of it with Amy, he had it all glittery it was fab.
Its such a joy to see him so happy and enjoying school.He is looking forward to his birthday he is 7 on the 24th i can hardly believe he is 7 already where does the time go?

Just a note to say I'm thinking of all the people lost in the 9/11 atrocity's they will never be forgotten, it makes you realise how important family are and how short life can be .

Back to my own routine!

Alan and Amy are now back at school, the summer holidays are over! not that we have had summer weather it has been really woeful, the rain has been awful. Alan has settled back in at school and likes his new teacher, with the schools assistance we are working through the issues of taking tablets and at school he has real issues with going to the toilet so its challenging but we are trying hard to work through it.

I'm also waiting for the hospital to get back to me Alan has been struggling with a cough and sore nose for weeks we had handed in a swab but some how it got lost so i handed in a new one and the results should be back today at some point i hope.

I'm getting back to being in my own routine with the kids being at school although i do miss them, I'm catching up with things i didn't do with them being off.

Ive uploaded some pics of the kids going back to school.

Sorry for delay

Sorry for the delay in posting its been non stop with the kids being on holiday from school. Alan is much the same from the last post,still struggling with medicine and the having to take them.Emma our psychologist came out to the house and went through how Alan's body works and why he needs to take tablets, he seemed to enjoy listening to her and we came up with the idea of making a reward chart for him when he takes his medicine so my hubby has been busy making one, a army one, hopefully it will be finished today, i will post a pic next time i update, it is looking really smart, lets hope it works.

The kids are back to school on Monday and I'm hoping things get better for Alan, the school nurse was out yesterday going over his medical form so i made her aware of how Alan is feeling about things so she was going to a meeting with the headmaster so he is in the know of whats going on.We are also waiting on a swab result coming back,Alan's been suffering with a bug for the last 2 weeks, he had a course if antibiotics so we will see if its clear although I'm not hopeful he is still coughing really badly, I'm hoping we will find out today.