Clinic Visit

We had hospital last, for the start of Alan's annual review. He had his bloods taken and they arranged for him to go to the lab for a lung function test, to the x-ray department for a x-ray and scans of his abdomen, liver and portal system which are happening on the 1st February. He is also going to have 2 weeks of introvenus antibiotics starting on Monday. We are trained to do them at home, and although they are very tiring doing them it means we do not have to stay in hospital. Alan has been off school with a sickness bug and is just not quite himself, so, the IVs will hopefully help make him feel a lot better. I do worry at this time of year when its Alan's review time, i am hoping for good news in March when we see the specialist from Glasgow to get the results.  

First Day Back

Alan's first day back didn't get off to a good start, We got a call around 12 to say he was not feeling well. Alan went to get him and he looked ghastly, he was pale and gaunt.He had some calpol and he lay up on the sofa and slept for a while. He woke around 3 and was really burning up, he had a glass of water and just lay and watched TV. I made him tuna pasta for tea and he did manage to eat it, so hopefully he is on the mend. We have the cystic fibrosis clinic tomorrow at 10, Alan has his annual review. He will get his bloods taken tomorrow so I'm hoping he will feel better for that. I will blog tomorrow to let you all know.

Happy New Year

Happy new year firstly, i am hoping 2012 is a good year for us. I always wonder as we start a new year what it will bring, firstly health wise for Alan and what the year beholds for us. Hopefully Amy will be starting university in September, so that is something to look forward to. She has sent off to 5 universities for nursing, and one for music, so hopefully her results will be rewarded and she will get in. She is also starting driving lessons so she may pass her test this year too.

Alan and Amy are back at school tomorrow after the new year. Alan is also back at work, so i will be on my own for a little while. I'm going to the gym in the morning for an enrolment so that will pass some of my morning. Then i am meeting my sister for a little bit, we will have a bite of lunch and a catch up.

I am also writing another blog on weight loss, I'm still trying very hard, hence the reason why i am going for the gym induction, I'm trying to tone up too. here's the link if you want a look...
  http://jewelsweightloss.blogspot.com/

Christmas

We had a very quiet Christmas. Alan had asked for a BMX bike and a guitar. He also really wanted a 3ds but wasn't sure If Santa could bring all of these gifts. He managed, because he had been the best bravest boy all year to get all the big things he wanted.. He was over the moon. I don't think I have seen him so excited it was lovely to see.. Hope everyone had a lovely Christmas xx

Birthday boy

Alan celebrated his 9th birthday on Saturday, i can hardly believe he is 9 time has flown past. He asked for a mobile phone, which he got and Moshi monster figures. We had a great day with him. He is doing OK at the moment, he had a infection but got 2 weeks of oral antibiotics for it so it seems to have helped him. He is due to have IVs at the end of October so hopefully he will stay well to then. Alan's dad is away fishing for the weekend so its only him and i here, we are going to go shopping tomorrow to spend some of his birthday money. I am also starting a new open uni course tomorrow, its a level 2, exploring psychology. I'm really looking forward to it. I did a level 1 psychology and managed to get a really good pass so hopefully i will can cope with this one!

Another day the same

Today has been much the same as yesterday, Wee Alan is no better today, in fact he has more spots today on his legs, back and face. He has no appetite at all and has hardly ate anything today or yesterday. He was up at 4 this morning with a very sore tummy. My poor baby is having such a hard time at the moment. If he is no better tomorrow i will ask the hospital to have a look at him.  

Chicken pox

Alan woke up yesterday morning covered in spots. I had a look at them and thought it was chicken pox so i called the hospital only to find out no one was there till Monday. I then called the GP, he saw Alan at 4.20 yesterday and confirmed it was indeed chicken pox. We left there and came home, he wasn't keen is starting Alan on anything, although i knew that anyone with cf and diabetes should have a antiviral med, well at our hospital anyway. I could not settle so last night at 7 i rang the ward, they were so nice, the Dr organised a prescription and we got the meds for Alan. He is still the same today , it has floored him, hes tired and has a sore throat, he has spots EVERYWHERE. As i write this he is sound asleep and that is sooo not like him during the day. He is having IVs at the moment too so i really feel for him he has a lot to cope with at the moment.