Alans Mri scan results

Firstly i would like to update you on Alan's surgery, his operation was a success, and he slowly recovered from it, with him being put to sleep with Gas because they could not get a vein in his hand or arm, it irritated his lungs a lot and he had a awful cough, he had 2 weeks worth of IVS to try and keep any bugs at bay and he will have that every 3 months now.

They have also put him on the brown steroid inhaler as a preventer he has been very wheezy lately .

Now i updated last month that we were waiting on MRI results, we got a call a few weeks ago to ask me to go up to hospital they wanted to talk to me, they told me that they had found fluid at the back of his brain and a mass at the top of his nick, they could not see properly so they needed to do a scan of Al ans spine, what a two weeks it was we had surgery one week and the scan the following and obviously we were worried out our minds. We went for the scan but they did not say a thing, only that the results would be available in a few days.Alan was so so brave it took 2hrs to do the scan and he had to lie very still. We waited a week and no news, so last Friday i could not take the wait anymore, i rang the hospital, our nurse called Yorkhill and they said the results were available but the neurologist had not looked at it, so she was emailing him, Monday was the bank holiday so there was nothing but on tuesday the hospital rang to ask if we could go up on Friday the 3rd, so of course we agreed.

We went and the neurologist told us that alan had a chiari 1 malformation, with a Syrinx.

This means for Alan, that the part that joins his brain and spinal column has a malformation and part of his brain is through the hole, the part that controls his movement, it is so tight that it has formed a syrinx, which is a build up of fluid on his spinal cord, they are referring him to a specialist hospital in glasgow for him to have surgery on his brain and spinal cord, we are shocked and are very very worried, The headaches he has been having is a sign of this condition, but if they dont do the operation it could leave alan paralysed and we do not want that at all.He already has more than enough to deal with and now all this.

He said to me last night he is sick of hospitals, but there is nothing i can do to stop this

Please keep him in your thoughts.