My Week

I have had a very difficult week this week, trying to come to terms with everything we have been told from the specialist last week. Every time i look at Alan i feel like crying i just cant bare the pain. We are still waiting to hear from the hospital for his MRI scans, still no word, or on his operations so this week has been stressful, i am also waiting on the psychologist calling to arrange a meeting to talk over all this with her. Alan my husband deals with things so differently from me, he just does not want to think or talk about this so i feel very lonely and have to keep my feelings in as he does not want to talk about it. CF sucks. 21years in October i am married and we used to talk about everything but anything to do with cf we just cant talk, its just too hard. I do feel lonely sometimes, as if no one understands me :(

Alan has had a good week at school, he has had 10/10 5 weeks in a row in his spelling test, he blew me away today when i picked him up i never expected him to get 10/10 this week his words were so difficult, he has autumn, and astronaut and August were in his words this week., but no, he managed them all. I'm a very proud mum.Well done Alan xxx