Christmas

We had a very quiet Christmas. Alan had asked for a BMX bike and a guitar. He also really wanted a 3ds but wasn't sure If Santa could bring all of these gifts. He managed, because he had been the best bravest boy all year to get all the big things he wanted.. He was over the moon. I don't think I have seen him so excited it was lovely to see.. Hope everyone had a lovely Christmas xx

Birthday boy

Alan celebrated his 9th birthday on Saturday, i can hardly believe he is 9 time has flown past. He asked for a mobile phone, which he got and Moshi monster figures. We had a great day with him. He is doing OK at the moment, he had a infection but got 2 weeks of oral antibiotics for it so it seems to have helped him. He is due to have IVs at the end of October so hopefully he will stay well to then. Alan's dad is away fishing for the weekend so its only him and i here, we are going to go shopping tomorrow to spend some of his birthday money. I am also starting a new open uni course tomorrow, its a level 2, exploring psychology. I'm really looking forward to it. I did a level 1 psychology and managed to get a really good pass so hopefully i will can cope with this one!

Another day the same

Today has been much the same as yesterday, Wee Alan is no better today, in fact he has more spots today on his legs, back and face. He has no appetite at all and has hardly ate anything today or yesterday. He was up at 4 this morning with a very sore tummy. My poor baby is having such a hard time at the moment. If he is no better tomorrow i will ask the hospital to have a look at him.  

Chicken pox

Alan woke up yesterday morning covered in spots. I had a look at them and thought it was chicken pox so i called the hospital only to find out no one was there till Monday. I then called the GP, he saw Alan at 4.20 yesterday and confirmed it was indeed chicken pox. We left there and came home, he wasn't keen is starting Alan on anything, although i knew that anyone with cf and diabetes should have a antiviral med, well at our hospital anyway. I could not settle so last night at 7 i rang the ward, they were so nice, the Dr organised a prescription and we got the meds for Alan. He is still the same today , it has floored him, hes tired and has a sore throat, he has spots EVERYWHERE. As i write this he is sound asleep and that is sooo not like him during the day. He is having IVs at the moment too so i really feel for him he has a lot to cope with at the moment.

Alans update

Hi everyone, Alan is doing ok at the moment his line went in yesterday and is having 2 weeks of ivs. His tummy for the first few days is always sore, so we are just taking it easy. He is enjoying being on his school holidays especially when he is having ivs. We went ten pin bowling yesterday Alan and i, we had a good time, wee Alan won by 47 points im not to good, then we went to the hospital to get his port accessed. He did really well and was very brave.

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Insulin

I don't know what has happened but Alan is really struggling doing his insulin again, after months of doing it no problem he is now finding it impossible to do the injections. He gets very tearful and upset, saying he wants to do it but cant.. Any tips would be gratefully received :-)

Scans

Alan is in the process of having his annual review. He has had his bloods taken when we were at clinic 2 weeks ago. He went on Friday to have a x-ray and an abdominal scan, he did very well getting it done, he is brave. He has to go next week for a lung function test and a walking test, I'm not so hopeful he will do well in the walking test as his legs are sore most of the time. The results will be available to us at our appointment in March where we see the specialist from Glasgow, where they make the plan for Alan's treatment for the next year. So fingers crossed we get a good result.

Our pastime

Alan and I has been looking at an animal webcam in a place we visit in the summertime, its a safari park, they have a baby Rhino at the moment that you can look in on anytime which we do on a daily basis
Here is the link if you want to have a look.
 http://www.blairdrummond.com/animal-webcams.html

Alan was at his aunts at the weekend, she got a rescue dog that Alan went to help choose, he loves spending time with her, she is called Holly. It gave Big Alan and I time to go our and have some quality time together which i enjoyed very much. I am in a happy place in my head just now and I'm loving feeling so positive looooong may it continue.

New Year

Long time, no blog.. I just don't know where the time has went.

Alan is keeping well at the moment with just the problems with his legs causing him problems but is coping well. He is now doing his insulin everyday himself now with no difficulties, which is lovely to see.
I made a decision in September to do some studying and took the route of studying with the open university so i could be at home with Alan and study in my own time. I have just completed an opening course called Starting with Psychology, i loved every minute of it. I'm currently doing Discovering psychology which is a longer course and i am finding it challenging but loving it. I feel its given me another focus rather than sitting worrying about things i cant change, all i can do is continue to do my best to keep Alan well.
Amy has also been nominated for North Ayrshire's young musician of the year, we are soooo proud of her, she plays the clarinet and keyboard.
Will post again soon.... that's a promise.