Scans

Alan is in the process of having his annual review. He has had his bloods taken when we were at clinic 2 weeks ago. He went on Friday to have a x-ray and an abdominal scan, he did very well getting it done, he is brave. He has to go next week for a lung function test and a walking test, I'm not so hopeful he will do well in the walking test as his legs are sore most of the time. The results will be available to us at our appointment in March where we see the specialist from Glasgow, where they make the plan for Alan's treatment for the next year. So fingers crossed we get a good result.

Our pastime

Alan and I has been looking at an animal webcam in a place we visit in the summertime, its a safari park, they have a baby Rhino at the moment that you can look in on anytime which we do on a daily basis
Here is the link if you want to have a look.
 http://www.blairdrummond.com/animal-webcams.html

Alan was at his aunts at the weekend, she got a rescue dog that Alan went to help choose, he loves spending time with her, she is called Holly. It gave Big Alan and I time to go our and have some quality time together which i enjoyed very much. I am in a happy place in my head just now and I'm loving feeling so positive looooong may it continue.

New Year

Long time, no blog.. I just don't know where the time has went.

Alan is keeping well at the moment with just the problems with his legs causing him problems but is coping well. He is now doing his insulin everyday himself now with no difficulties, which is lovely to see.
I made a decision in September to do some studying and took the route of studying with the open university so i could be at home with Alan and study in my own time. I have just completed an opening course called Starting with Psychology, i loved every minute of it. I'm currently doing Discovering psychology which is a longer course and i am finding it challenging but loving it. I feel its given me another focus rather than sitting worrying about things i cant change, all i can do is continue to do my best to keep Alan well.
Amy has also been nominated for North Ayrshire's young musician of the year, we are soooo proud of her, she plays the clarinet and keyboard.
Will post again soon.... that's a promise.

Alans Dream come true

Alan was lucky enough to be chosen by This Morning Tv show to have a dream come true.It was all a huge surprise to him, he knew nothing about it. Him and I flew down to London, we stayed in a hotel overnight and Alison Hammond from this morning came in the morning to surprise him.He was so shocked. She told him that i had told her he loved army, she then asked him if he would like to go up in a helicopter and then go to drive tanks, you can imagine how excited he was. It was such a great day, he was made feel so special and with everything he has to deal with it was just what he needed.

We were at hospital on Thursday having 2 ct scans with Alan, they discovered that his spine is out of alignment at the top so before any surgery can be done they needed to do the ct scans, he was really brave it did look uncomfortable as he had to lie with his head tilted backwards and one tilted forward. Results should be available next week sometime.

He also has managed to do his insulin himself which was a massive step for him, he and i was so pleased im really proud of him.

So sorry for the delay in a update its been neverending lately, Alan has just finished 2 weeks worth of iv's so that has made him feel a little better.

I have also taken a huge leap and have signed up for a open university course, something i never thought i would be able to do, im doing a psychology course and if im honest im proud of myself, ive came a long way since the start of the year.     

Alans Fishing Trip

Alan took Wee Alan fishing for the first time on Saturday he really enjoyed it, he never caught any fish but wants to go again to try to catch one.
Alan learned him to cast out his line and he can so it really well now. We took a little picnic with us and made a day of it. Here's a few pics of him.   

The pic at the top is one of the strawberries we have been growing, first time we have ever grown anything.
Alan has enjoyed picking and eating them, i love the pic of him with the first strawberry he looks so cheeky in it.

Prize Giving

 Alan was lucky enough to win a prize at prize giving yesterday. He won the citizenship award. His head teacher said he is a inspiration to everyone he meets, that includes us.He endures so much, never complains and is a true fighter.

I have been reading that Connor aged 7 lost his fight with CF, I feel so very sad for the family , it must be the worse thing. Doing everything in your power to keep your child as well as possible, and sitting watching , not being able to do a solitary thing to stop what is happening. Oh how awful. Alan is my world, my miracle ,the most precious gift we were lucky enough to be entrusted with.Thinking about it for a minute, a second, is unbearable so please give a thought to Connor and his family. Breathe Easy Connor xx

Safari Park

We had a day out to the safari park on Saturday it was so nice to leave our troubles at home for the day. I really enjoyed our day out.Wee Alan had a brilliant time, he loves animals.He was on 24hr sugar glucose monitoring for a few days so it was a good distraction to take his mind off the needle in his tummy. He was having it checked to find out about insulin amounts being right. Here are some pics from our day.